January 19, 2024
Tony and Beth Maccani have three beautiful girls, Vivien (5), Lucy (4) and Mae (3). “When Lucy was about nine months old, we knew she was having some vision issues,” said Tony Maccani. After appointments with ophthalmology and neurology, Lucy was diagnosed with a cerebral vision impairment called DNM1.
The Maccani family became aware of Clovernook Center in spring 2023 after a therapist at school suggested they look at the Clovernook Center summer camp program for Lucy. Lucy and Vivien both attended the Arts and Culture camp in July.
“Clovernook Center was so good at meeting Lucy where she is. We never felt her medical needs couldn’t be met and everything at camp was adapted to meet Lucy’s needs,” Maccani said. In addition to low-vision, Lucy has cerebral palsy with low muscle tone. Maccani explained that they’ve had difficulty finding resources for children with special needs that engage them both physically and mentally.
“Everyone at camp took great care of Lucy and she worked hard to participate in camp every day,” said Maccani.
Lucy’s sister Vivien attended camp with Lucy and also had a great time. “Interacting with a lot of kids with visual impairments was good for Vivi. Although she’s only five, I think it gave her a better perspective on challenges other kids face.” Maccani explained.
The Maccani’s are planning to attend camp again this summer. “It was just unbelievable. We haven’t found many opportunities for Lucy to participate and the Clovernook Center team made it possible.”
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